Dear Lupus...

Dear lupus,
Stop it!
Thanks

Dear Lupus, 

I’ve learned so many things from you. Recently I noticed a change. 

I am not a liar. I can’t tell a lie. Something inside of me makes that impossible. Therefore when the question is asked. What do you do? Well… It always feels like a loaded. 

Previously I would completely panic. Now its easy. I feel no shame. I don’t work. I have an illness that prevents me. I can even say it with a smile on my face. I didn’t ask for it to be that way. 

I have learned through shaking new hands and looking into new eyes that it isn’t always going to make someone write me off. It has happened before but hey it’s your loss. 

I am still a person(a woman) . A pretty amazing person… lupus and all. 

As Always with love 

Dear Lupus, 

I am not sure if you’re the one I have to thank or perhaps blame for making me a responsible adult more often than not.

Making my new medication list today. It’s a little over due. Feeling pretty good that I have down it to so few drugs. I have so many good friends with a much a longer list. The side effects we deal with and the stress of going on and off things. I don’t think our friends or family always know the stress that places.

I still hate taking the pills. I try not to think about it. I am grateful that they do help. I still have no good answer for that horrible… I just took my morning meds feeling. Ginger soothes it a little.

I have this gut feeling that treatment options will change a great deal in my lifetime. This is very exciting me. I am always glad to find new research is being done. 

Til’ Tomorrow, 

AS Always with love 

Dear Lupus, 

With you and I, it’s always a stop and go, more to slow.Today you stopped, maybe if only for a little while. I am trying a new diet at the suggestion of a kind soul. Grateful to know such a person. So far, so good. Fingers and toes crossed. I’d be happy to get any relief.

Today is good. I am well on my way to having many good days. There is a storm brewing outside and I can feel it in my joints. Still! slightly less than I am used to. It’s good!  

Early this morning as I was making my smoothie. Everything was still quiet and I thought about how grateful I am to know the people I do. Still glad to shake a new hand and hear a new story. However, I must tell you, I am one lucky woman. I have many good people in my life. Sometimes it feels they are too far away but never too long. 

Til’ Tomorrow, 

As Always with Love